Last Update from Illinois
To all of Max's family and friends,
This is the last email from Illinois. Tomorrow morning (Friday, July 18) we are heading out caravan-style for the trek northwest. My mom is driving our other car and it's a good thing because we've packed up enough stuff to fill both vehicles.
We had a goodbye dinner/party at Margaret's sister's house and it was a nice way for us to be able to see some people one more time. It touched our hearts to know that so many people in our lives feel such an attachment to our son. Both this party and Max's first birthday party were nice celebrations of the determination of our Mighty Max. Our hearts are heavy and filled with hope as we are about to hit the road. We know that this is what we must do so that all of the people who have come to love him so much will be able to do so for a long long time.
Some important info about contacting us:
For the next week or so we will be at hotels near the hospital. There simply is not a room available at the Ronald McDonald House. We will not be checking email for a while, but once we have a more permanent home we will be in touch. After that, we are unlikely to be filling your mailboxes much more. We will be writing to the website as much as possible and that will be the way you will all be updated. That’s not to say that some of you won’t be getting individual emails at very odd hours of the day, but we are unlikely to continue this mass mailing.
We will be checking the site when we’re in Minnesota. Why? Because we’re addicted to our guestbook! It’s been so encouraging to read so many emails and be introduced to so many wonderful families. Please continue to check in and think of us! Special thanks again to Chris Vasilakis for doing such a great job on the site.
In other news, Max is obsessed with standing continuously. This means that he is unbelievably frustrated when he’s not either shuffling along a wall or just standing against the TV. This morning he maneuvered Jackie Chan-style across two chairs, a table, a bench and a banister to climb up two stairs. Luckily, his grunting gave him away and I was able to make a rescue before he slid downward. He also began feeding himself a couple of weeks ago, and we think he said ‘up’ the other day. If he didn’t have this disease, it’s amazing to think what his potential would be. We can’t wait to discover his new potential after transplant. Grace is doing well, and amazes us with her intelligence and imagination. Last night she was able to sound out words from a book, and is able to distinguish nouns, verbs, and adverbs. We know she is going to miss her friends, her backyard, and her ‘beautiful bedroom,’ but we are hopeful she will adjust well to her MN home.
Wishing everyone the best and we’ll be in touch from the land of 10,000 lakes.
Mike & Margaret
This is the last email from Illinois. Tomorrow morning (Friday, July 18) we are heading out caravan-style for the trek northwest. My mom is driving our other car and it's a good thing because we've packed up enough stuff to fill both vehicles.
We had a goodbye dinner/party at Margaret's sister's house and it was a nice way for us to be able to see some people one more time. It touched our hearts to know that so many people in our lives feel such an attachment to our son. Both this party and Max's first birthday party were nice celebrations of the determination of our Mighty Max. Our hearts are heavy and filled with hope as we are about to hit the road. We know that this is what we must do so that all of the people who have come to love him so much will be able to do so for a long long time.
Some important info about contacting us:
For the next week or so we will be at hotels near the hospital. There simply is not a room available at the Ronald McDonald House. We will not be checking email for a while, but once we have a more permanent home we will be in touch. After that, we are unlikely to be filling your mailboxes much more. We will be writing to the website as much as possible and that will be the way you will all be updated. That’s not to say that some of you won’t be getting individual emails at very odd hours of the day, but we are unlikely to continue this mass mailing.
We will be checking the site when we’re in Minnesota. Why? Because we’re addicted to our guestbook! It’s been so encouraging to read so many emails and be introduced to so many wonderful families. Please continue to check in and think of us! Special thanks again to Chris Vasilakis for doing such a great job on the site.
In other news, Max is obsessed with standing continuously. This means that he is unbelievably frustrated when he’s not either shuffling along a wall or just standing against the TV. This morning he maneuvered Jackie Chan-style across two chairs, a table, a bench and a banister to climb up two stairs. Luckily, his grunting gave him away and I was able to make a rescue before he slid downward. He also began feeding himself a couple of weeks ago, and we think he said ‘up’ the other day. If he didn’t have this disease, it’s amazing to think what his potential would be. We can’t wait to discover his new potential after transplant. Grace is doing well, and amazes us with her intelligence and imagination. Last night she was able to sound out words from a book, and is able to distinguish nouns, verbs, and adverbs. We know she is going to miss her friends, her backyard, and her ‘beautiful bedroom,’ but we are hopeful she will adjust well to her MN home.
Wishing everyone the best and we’ll be in touch from the land of 10,000 lakes.
Mike & Margaret
posted by Mike Ciacciarelli
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