Day -5 aka Mommy's heart attack
1 late nap + 1 late breathing treatment + 1 messy leaky diaper = 1 baby who is ready to party at 11 PM
We have been busy since I wrote in this morning. Let's just say Max has needed 4 sheet changes today.
Dr. Grewal made his rounds today and was pleased to hear Max is still eating well. However, his blood pressure has been on the high side lately and he wanted to know if Max has been very upset during pressure checks. When I told him no he decided to place Max on some blood pressure medication. He begins steroids Monday and that will raise his pressure so they want to be on top of it. Tonight when the nurse checked it was really high. SHe alerted the doctor but when she checked it again it was much lower.
This evening Max scared the pants off of us. Mike and I were getting ready to go on a break when Grandma Chick noticed Max was bleeding. I quickly called the nurse. Mike lifted up his shirt to see if Max ripped out his central line and thank God it was still in tact. Max must have stepped on the IV connection to his venous line (the part of the central line they use for blood draws), and blood was leaking from it. It was not a lot of blood, but it was enough to scare us. The nurse pinched it off and attached a new tube, taping it together so it doesn't happen again. They should have checked my blood pressure after that!
Max has been making the required amount of wet diapers today. He has also given us the added bonus of the leaky messy ones. Besides the bloody sheet change, we've had to do many soiled sheet changes, including one a few minutes ago right when Max started to get sleepy. Needless to say the outfit, diaper and sheet changes woke him up and he was flirting with the nurse's aide.
Max's buttski was looking better this morning but it is red again tonight. I guess the new chemo is irritating it. We continue to use tons of "butt paste."
Mike, Dana and Peeps took Grace to a very nice park today and they had fun. Grace went to bed at a normal hour for the first time since we've been out here. She's been a bit crabby and moody the past few days and I cannot blame her.
We are so grateful Max is doing as well as he is. Let's hope for continued success, lower blood pressure and good diapers!
-Margaret
We have been busy since I wrote in this morning. Let's just say Max has needed 4 sheet changes today.
Dr. Grewal made his rounds today and was pleased to hear Max is still eating well. However, his blood pressure has been on the high side lately and he wanted to know if Max has been very upset during pressure checks. When I told him no he decided to place Max on some blood pressure medication. He begins steroids Monday and that will raise his pressure so they want to be on top of it. Tonight when the nurse checked it was really high. SHe alerted the doctor but when she checked it again it was much lower.
This evening Max scared the pants off of us. Mike and I were getting ready to go on a break when Grandma Chick noticed Max was bleeding. I quickly called the nurse. Mike lifted up his shirt to see if Max ripped out his central line and thank God it was still in tact. Max must have stepped on the IV connection to his venous line (the part of the central line they use for blood draws), and blood was leaking from it. It was not a lot of blood, but it was enough to scare us. The nurse pinched it off and attached a new tube, taping it together so it doesn't happen again. They should have checked my blood pressure after that!
Max has been making the required amount of wet diapers today. He has also given us the added bonus of the leaky messy ones. Besides the bloody sheet change, we've had to do many soiled sheet changes, including one a few minutes ago right when Max started to get sleepy. Needless to say the outfit, diaper and sheet changes woke him up and he was flirting with the nurse's aide.
Max's buttski was looking better this morning but it is red again tonight. I guess the new chemo is irritating it. We continue to use tons of "butt paste."
Mike, Dana and Peeps took Grace to a very nice park today and they had fun. Grace went to bed at a normal hour for the first time since we've been out here. She's been a bit crabby and moody the past few days and I cannot blame her.
We are so grateful Max is doing as well as he is. Let's hope for continued success, lower blood pressure and good diapers!
-Margaret
posted by Mike Ciacciarelli
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