Day +31
After working very hard to breathe for 2 days Max has been reintubated. The doctors tried many things to try and stop his wheezing. The BMT and pulmonary doctors were becoming increasingly worried that Max was working too hard and was going to tire and end up in an emergency situation. The ICU doctor was willing to give him more time to see if the meds would take effect, but finally the decision was made and the tube went in.
So many things have been tried over the past few days I am not sure if I can relate all of them. The most likely culprit for the wheezing is the ATG he received for his GVH. They have not yet started the rabbit ATG today because his breathing never stabilized enough to give it. Now that he is on the vent he will catch up on his meds. They are running into some medicine compatibility problems again because of all of the new medications, and hopefully they will be able to work those out without having to give him another line.
The pulmonary and ICU docs mentioned that his current lung issues might be caused by GVH in the lung, but the BMT docs do not believe this to be the case right now. His skin, liver and gut seem to have responded a little to the creams, steroids and day of horse ATG he received. We hope and pray that the new ATG will get things under control.
The steroids elevated his glucose level so now he is on insulin. He has been given a lot of sedation and a paralytic so that he can rest. The reintubation itself went smoothly.
I wish I could paint a better picture of what things are like here so those of you who are far from us could understand. I don't really think it is possible to put into words the stress and heartache we feel. Things change from moment to moment and just when you begin to feel optimistic things change again. I know no one wants to hear this but it is truly hard to feel hopeful at times.
Please continue to pray for Max as we know you all will. We love and miss our son so very much.
-Margaret
So many things have been tried over the past few days I am not sure if I can relate all of them. The most likely culprit for the wheezing is the ATG he received for his GVH. They have not yet started the rabbit ATG today because his breathing never stabilized enough to give it. Now that he is on the vent he will catch up on his meds. They are running into some medicine compatibility problems again because of all of the new medications, and hopefully they will be able to work those out without having to give him another line.
The pulmonary and ICU docs mentioned that his current lung issues might be caused by GVH in the lung, but the BMT docs do not believe this to be the case right now. His skin, liver and gut seem to have responded a little to the creams, steroids and day of horse ATG he received. We hope and pray that the new ATG will get things under control.
The steroids elevated his glucose level so now he is on insulin. He has been given a lot of sedation and a paralytic so that he can rest. The reintubation itself went smoothly.
I wish I could paint a better picture of what things are like here so those of you who are far from us could understand. I don't really think it is possible to put into words the stress and heartache we feel. Things change from moment to moment and just when you begin to feel optimistic things change again. I know no one wants to hear this but it is truly hard to feel hopeful at times.
Please continue to pray for Max as we know you all will. We love and miss our son so very much.
-Margaret
posted by Mike Ciacciarelli
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