Day +59
WBC 6.6
Max had a pretty good day today. He has been enjoying his bottles of Pedialyte. Dr. Sweeney said he can have 1 oz every hour, but Max wishes he could have more. He still sounds VERY junky, and is so stubborn when they try to make him cough. If only he would cough he would be so much better. Dr. Sweeney wants him weaned off his narcotics, as they are also cough suppressants, and Max is handling it quite well. He has not needed any bumps on his pain meds or extra meds to help him sleep. The bottle is the best thing for his mood it seems! They just have to watch his ins and outs very carefully so that he doesn't get flooded with fluid and end up in respiratory distress that way.
Max has been very shaky today and he still seems very spaced out so Dr. Charnas, Max's neurologist, will be paying him a visit tomorrow. Dermatology will also be stopping by to check out the yeasty rash that is spreading. His stools continue to be bloody and we are very doubtful that the steroids did the trick, although the docs are willing to wait a bit before doing anything.
Grace spent some quality time with Grandpa Chick today and we are hoping to make it to the Children's Museum of St. Paul tomorrow. Grandma Chick left but will be back in November. She is hoping to see Ma up and around at that time .
That's all for now. Keep those prayers coming for Max and all of our friends at the RMH.
-Margaret
Max had a pretty good day today. He has been enjoying his bottles of Pedialyte. Dr. Sweeney said he can have 1 oz every hour, but Max wishes he could have more. He still sounds VERY junky, and is so stubborn when they try to make him cough. If only he would cough he would be so much better. Dr. Sweeney wants him weaned off his narcotics, as they are also cough suppressants, and Max is handling it quite well. He has not needed any bumps on his pain meds or extra meds to help him sleep. The bottle is the best thing for his mood it seems! They just have to watch his ins and outs very carefully so that he doesn't get flooded with fluid and end up in respiratory distress that way.
Max has been very shaky today and he still seems very spaced out so Dr. Charnas, Max's neurologist, will be paying him a visit tomorrow. Dermatology will also be stopping by to check out the yeasty rash that is spreading. His stools continue to be bloody and we are very doubtful that the steroids did the trick, although the docs are willing to wait a bit before doing anything.
Grace spent some quality time with Grandpa Chick today and we are hoping to make it to the Children's Museum of St. Paul tomorrow. Grandma Chick left but will be back in November. She is hoping to see Ma up and around at that time .
That's all for now. Keep those prayers coming for Max and all of our friends at the RMH.
-Margaret
posted by Mike Ciacciarelli
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