Day +95
WBC 6.0
Howdy Max Team,
Our little dude was up quite a bit last night and was feisty with his blood pressure. So they changed some meds and now he's taking a snooze on his side. This allows his back to "air out" since it's pretty eroded from being on it for so long. His skin has been peeling and breaking down. Hopefully he'll tolerate it. Thanks for all the support for Margaret's honest update. Everyone's support has been, again, a source of strength. Since there's not much news to report yet, here's another guest report filed by my Aunt Nancy. She just got back to Pennsylvania and sent this back to us. I really like her military analogy. Here it goes:
--mike
_____________
Hi Max Fans! I was fortunate enough to be able to spend an entire week with Mike, Margaret, Grace and Max! I was hoping to be Max’s good luck charm, but during the week Max continued with ups and downs. I want to tell all of the loyal readers that Max truly is the fighter that you all believe him to be. He reminds us daily with the raise of his fist or a scowl on his face that he is still here and ready to do battle. It was so reassuring to actually see that Max has the best army behind him.
It’s also easy to see where Max gets his strength. Mike and Margaret are nothing short of amazing. They’re prepared for the worst and enjoy celebrating Max’s milestones with all of us. They never leave the war room. Their strength and dedication is unbeatable. Max couldn’t have a better advocate.
I feel the need to spotlight two of Max’s nurses, Anmarie and Linda. Not because they are the best (because they are all really great), but because they are the nurses that I met last week. So many great hands take part in Max’s care, but these two truly care for our dear Max. I watched them deliver continuous care with the gentlest hands, and the softest voices that remind Max that they’re still behind him.
And then there’s Grace, AKA, “Princess Many Feathers,” “Dr. Sophie,” or “Chloe” and at times, “Mother”. What a great time we had. I love her imagination and am completely amazed by her ability to live in the “now”. No dwelling on the past or worrying about the future for her. She was truly a joy.
I could write for days, and I know you would read the whole entry because if you’re here, you’re a Max fan. I’ll stop here for now, but just ask that you all continue to pray for Max. Please also say a prayer for Max’s doctors. If you read Max’s updates and have never dropped a line in the guest book, please consider doing it soon. Don’t be shy…Mike and Margaret love to read the entries. It keeps them going through the long days and nights and Fairview.
Let’s hope Max continues to do well with dialysis and the vent.
All my love,
Nancy
Howdy Max Team,
Our little dude was up quite a bit last night and was feisty with his blood pressure. So they changed some meds and now he's taking a snooze on his side. This allows his back to "air out" since it's pretty eroded from being on it for so long. His skin has been peeling and breaking down. Hopefully he'll tolerate it. Thanks for all the support for Margaret's honest update. Everyone's support has been, again, a source of strength. Since there's not much news to report yet, here's another guest report filed by my Aunt Nancy. She just got back to Pennsylvania and sent this back to us. I really like her military analogy. Here it goes:
--mike
_____________
Hi Max Fans! I was fortunate enough to be able to spend an entire week with Mike, Margaret, Grace and Max! I was hoping to be Max’s good luck charm, but during the week Max continued with ups and downs. I want to tell all of the loyal readers that Max truly is the fighter that you all believe him to be. He reminds us daily with the raise of his fist or a scowl on his face that he is still here and ready to do battle. It was so reassuring to actually see that Max has the best army behind him.
It’s also easy to see where Max gets his strength. Mike and Margaret are nothing short of amazing. They’re prepared for the worst and enjoy celebrating Max’s milestones with all of us. They never leave the war room. Their strength and dedication is unbeatable. Max couldn’t have a better advocate.
I feel the need to spotlight two of Max’s nurses, Anmarie and Linda. Not because they are the best (because they are all really great), but because they are the nurses that I met last week. So many great hands take part in Max’s care, but these two truly care for our dear Max. I watched them deliver continuous care with the gentlest hands, and the softest voices that remind Max that they’re still behind him.
And then there’s Grace, AKA, “Princess Many Feathers,” “Dr. Sophie,” or “Chloe” and at times, “Mother”. What a great time we had. I love her imagination and am completely amazed by her ability to live in the “now”. No dwelling on the past or worrying about the future for her. She was truly a joy.
I could write for days, and I know you would read the whole entry because if you’re here, you’re a Max fan. I’ll stop here for now, but just ask that you all continue to pray for Max. Please also say a prayer for Max’s doctors. If you read Max’s updates and have never dropped a line in the guest book, please consider doing it soon. Don’t be shy…Mike and Margaret love to read the entries. It keeps them going through the long days and nights and Fairview.
Let’s hope Max continues to do well with dialysis and the vent.
All my love,
Nancy
posted by Mike Ciacciarelli
0 Comments:
Post a Comment
<< Home