At the Ronald McDonald House
Max fans,
Today marked our 3rd day at the Ronald McDonald House and we are settling in nicely. The place is amazing. There are over 40 rooms,
all full with families who have children with terminal illness. You would think you'd be falling over people here, but it is actually very quiet and seems empty at times. You see most people at dinner time. Almost every night a local group comes in and makes dinner for everyone! There is also a video library, book library, computer room, game rooms, play rooms, playgrounds, a gym and a full basketball court in the basement. There are planned activities for the kids as well.
Grace is having a ball. She made a new friend named Kendell who is 5 and is beginning her transplant work up for leukemia. Grace will be going to a book club on Tuesday with Grandma Chick.
We also had the opportunity to meet some other amazing Hurler families this weekend. A few doors down from us are the parents of Bella (http://www.caringbridge.org/ia/isabella/ ). a little girl who began chemo last week. Taylor and her family have been here a while and they have been helpful as well (http://www.caringbridge.org/mn/taylor/). Today we met Aaron Athy (http://www.caringbridge.org/il/aaronathy/), who will be going home
tomorrow (way to go Aaron!). And last night we met Susannah
(http://www.caringbridge.org/page/susannah/) who was here for a follow
up visit. All of these families give us hope that we can make it through this.
Max has a very busy week ahead of him. We are to arrive at the BMT clinic at 8 am tomorrow to begin his appointments. We don't have the full schedule yet, but we do know that Wednesday will be an anesthesia day. This is scary for us, because anesthesia is risky for Hurler kids - so say some hot prayers for Max that day! He will be getting an MRI, spinal tap and bronchoscopy.
Thanks for checking in on us. Keep checking the web site for updates and pictures from MN!
Love,
Margaret and Mike
Today marked our 3rd day at the Ronald McDonald House and we are settling in nicely. The place is amazing. There are over 40 rooms,
all full with families who have children with terminal illness. You would think you'd be falling over people here, but it is actually very quiet and seems empty at times. You see most people at dinner time. Almost every night a local group comes in and makes dinner for everyone! There is also a video library, book library, computer room, game rooms, play rooms, playgrounds, a gym and a full basketball court in the basement. There are planned activities for the kids as well.
Grace is having a ball. She made a new friend named Kendell who is 5 and is beginning her transplant work up for leukemia. Grace will be going to a book club on Tuesday with Grandma Chick.
We also had the opportunity to meet some other amazing Hurler families this weekend. A few doors down from us are the parents of Bella (http://www.caringbridge.org/ia/isabella/ ). a little girl who began chemo last week. Taylor and her family have been here a while and they have been helpful as well (http://www.caringbridge.org/mn/taylor/). Today we met Aaron Athy (http://www.caringbridge.org/il/aaronathy/), who will be going home
tomorrow (way to go Aaron!). And last night we met Susannah
(http://www.caringbridge.org/page/susannah/) who was here for a follow
up visit. All of these families give us hope that we can make it through this.
Max has a very busy week ahead of him. We are to arrive at the BMT clinic at 8 am tomorrow to begin his appointments. We don't have the full schedule yet, but we do know that Wednesday will be an anesthesia day. This is scary for us, because anesthesia is risky for Hurler kids - so say some hot prayers for Max that day! He will be getting an MRI, spinal tap and bronchoscopy.
Thanks for checking in on us. Keep checking the web site for updates and pictures from MN!
Love,
Margaret and Mike
posted by Mike Ciacciarelli
0 Comments:
Post a Comment
<< Home