Day -3
What a really rough day for Max! He has been vomiting almost all day. After some new anti-nausea meds this morning he was able to eat a little bit, but since then he hasn't been able to keep anything down.
He started the dreaded ATG today and he now has a fever. We have been trying to give him Tylenol because you can tell he feels terrible (moaning, rapid heartbeat and breathing), but he has been vomiting that up too. The nurse just got some in him and we are hoping it stays down long enough to work! Because of the fever, they started him on 2 new antibiotics, did blood and stool cultures and have ordered a chest x-ray. This means we will have to take him out of his germ controlled room and into the real world. He will have to wear a mask of course and we will do it when traffic in the hospital is low. We are still scared though.
He has 2 more days of ATG and then his transplant. His blood pressure is still high and he won't take the meds by mouth so they will probably order IV meds for him. And if he remains unable to eat by mouth they will start IV or NG tube feeds of TPN to make sure he is getting the proper nutrition before and during transplant. Most kids end up needing TPN, but it can take a toll on his insides so we'll have to keep trying to get him to eat some stuff by mouth. Please keep praying for Max. He is really feeling yucky.
-Margaret
He started the dreaded ATG today and he now has a fever. We have been trying to give him Tylenol because you can tell he feels terrible (moaning, rapid heartbeat and breathing), but he has been vomiting that up too. The nurse just got some in him and we are hoping it stays down long enough to work! Because of the fever, they started him on 2 new antibiotics, did blood and stool cultures and have ordered a chest x-ray. This means we will have to take him out of his germ controlled room and into the real world. He will have to wear a mask of course and we will do it when traffic in the hospital is low. We are still scared though.
He has 2 more days of ATG and then his transplant. His blood pressure is still high and he won't take the meds by mouth so they will probably order IV meds for him. And if he remains unable to eat by mouth they will start IV or NG tube feeds of TPN to make sure he is getting the proper nutrition before and during transplant. Most kids end up needing TPN, but it can take a toll on his insides so we'll have to keep trying to get him to eat some stuff by mouth. Please keep praying for Max. He is really feeling yucky.
-Margaret
posted by Mike Ciacciarelli
0 Comments:
Post a Comment
<< Home