day +33
WBC 2.2
Let me start by thanking everyone who worked so hard to give me such a great birthday. I woke up at the hospital feeling very depressed and not at all wanting to celebrate. But then I received a call from a very excited Grace. She was so thrilled that it was my birthday and it made me feel like celebrating some. I received so many nice emails, cards and packages and I was so touched. Mike and I were able to go on a date too. Max had his primary nurse Annmarie so we knew he was in very good hands. And the BMT fellow offered to stick around while we were out to make us feel more comfortable. The staff here is so wonderful. They signed a birthday card for me that Michael bought and everyone wished me a happy birthday. Now for the important stuff...
Max had a pretty quiet day today. He is no longer on the paralytic, but isn't very active. He rubs his eyes and nose sometimes but that is it. His tummy is pretty swollen today so they ordered an ultrasound of the liver, stomach, kidneys and bladder. The doctor came to talk to me a little while ago and said none of the results were surprising. He has some fluid in his abdomen because his veins are a bit leaky, which is pretty normal. He has what appears to be a small gall stone, but it may be some "sludge" caused by a lack of eating. His liver and kidneys looked okay. The vein leading to the spleen has some retrograde flow, and they are not sure why that is happening.
His body temperature has been low for the past few days and they cultured his blood to check for infection. Sometimes kids go the other direction when they have an infection and get cold instead of hot. He finished his last dose of rabbit ATG today! Hopefully it will take care of his GVH. His skin is looking better and his liver seems to be responding a little. Now only if his gut would too I am sure he would feel much better.
Thanks again and again for all the wonderful birthday wishes. I could not have asked for a better birthday under the circumstances.
-Margaret
Let me start by thanking everyone who worked so hard to give me such a great birthday. I woke up at the hospital feeling very depressed and not at all wanting to celebrate. But then I received a call from a very excited Grace. She was so thrilled that it was my birthday and it made me feel like celebrating some. I received so many nice emails, cards and packages and I was so touched. Mike and I were able to go on a date too. Max had his primary nurse Annmarie so we knew he was in very good hands. And the BMT fellow offered to stick around while we were out to make us feel more comfortable. The staff here is so wonderful. They signed a birthday card for me that Michael bought and everyone wished me a happy birthday. Now for the important stuff...
Max had a pretty quiet day today. He is no longer on the paralytic, but isn't very active. He rubs his eyes and nose sometimes but that is it. His tummy is pretty swollen today so they ordered an ultrasound of the liver, stomach, kidneys and bladder. The doctor came to talk to me a little while ago and said none of the results were surprising. He has some fluid in his abdomen because his veins are a bit leaky, which is pretty normal. He has what appears to be a small gall stone, but it may be some "sludge" caused by a lack of eating. His liver and kidneys looked okay. The vein leading to the spleen has some retrograde flow, and they are not sure why that is happening.
His body temperature has been low for the past few days and they cultured his blood to check for infection. Sometimes kids go the other direction when they have an infection and get cold instead of hot. He finished his last dose of rabbit ATG today! Hopefully it will take care of his GVH. His skin is looking better and his liver seems to be responding a little. Now only if his gut would too I am sure he would feel much better.
Thanks again and again for all the wonderful birthday wishes. I could not have asked for a better birthday under the circumstances.
-Margaret
posted by Mike Ciacciarelli
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