Day +96
WBC 8.2
Max is very unstable. He had a very rough night. Yesterday they were worried about managing very high blood pressures, now he is on dopamine for low blood pressure. He is currently getting dialysis again. So far, while he has taken a lot of weight off, it has not helped his lungs. His skin is still not looking very good which indicates that his graft vs. host disease is still not under control. They are managing each symptom with different medications, but one thing is just chasing the next. He may have had another bleed in his lungs and if he did, it might be from another infection. At this point, after all the graft vs. host disease (and the medication to treat it) Max probably does not have the ability to fight off another infection. That's been an opinion expressed by many doctors, not us. The doctor today said, "if it is an infection, I don' t know that we'd be able to get on top of it." And he described Max's life as being fragile "from shift to shift, hour to hour. He's a very sick little boy." We would still like to believe that he can beat anything. Last night things looked quite bad for Max. The doctors were and still are very worried. Today there are more people around, and they are all scrambling to try to figure out the big picture. Please pray for our son to have the strength to fight on if the fight is worth winning and the peace of mind to let go if the damage has been too great.
--mike
Max is very unstable. He had a very rough night. Yesterday they were worried about managing very high blood pressures, now he is on dopamine for low blood pressure. He is currently getting dialysis again. So far, while he has taken a lot of weight off, it has not helped his lungs. His skin is still not looking very good which indicates that his graft vs. host disease is still not under control. They are managing each symptom with different medications, but one thing is just chasing the next. He may have had another bleed in his lungs and if he did, it might be from another infection. At this point, after all the graft vs. host disease (and the medication to treat it) Max probably does not have the ability to fight off another infection. That's been an opinion expressed by many doctors, not us. The doctor today said, "if it is an infection, I don' t know that we'd be able to get on top of it." And he described Max's life as being fragile "from shift to shift, hour to hour. He's a very sick little boy." We would still like to believe that he can beat anything. Last night things looked quite bad for Max. The doctors were and still are very worried. Today there are more people around, and they are all scrambling to try to figure out the big picture. Please pray for our son to have the strength to fight on if the fight is worth winning and the peace of mind to let go if the damage has been too great.
--mike
posted by Mike Ciacciarelli
0 Comments:
Post a Comment
<< Home