Tuesday, November 20, 2007

4th Anniversary / Thanksgiving

It has been four years now, four years since we lost our baby boy, heard him laugh, saw him smile. Where has the time gone? Sometimes it feels like only yesterday, other times it feels like a million years since we've held him in our arms, or kissed his baby soft skin. We have worked really, really hard at life since Max left. We've worked hard to honor his memory and to keep on living. Fall is especially difficult, and despite all of the efforts to keep the sadness away, grief is a powerful force, and it manages to creep in. Halloween parties, volunteering, meetings, play dates, get-togethers, and work all serve as distractions, and we try to pack our fall with activities. Everyone thinks we are psycho for having bought and wrapped, and even shipped many of our Christmas gifts already, but we do it because we have to. Because if we sit around for too long with nothing to do in November, it all comes crashing down around us. This week, grief week, there is no keeping the sadness at bay.

People keep asking what we are doing for the Thanksgiving Holiday. We just say, "staying in town, what are you doing?" What we would love to say is, " Grieving. Fighting hard to survive what should be a joyous holiday. Trying not to panic when we see everyone at the grocery store loading their carts for Thanksgiving dinner. Putting on a brave face for our daughter. Reliving our son's last days, the sound of his very last breath. Remembering the look of sheer helplessness and terror in our spouse's eyes as we watched Max slip away, giving Max a bath after he left us and dressing him so that his sister could come over from the Ronald McDonald House and say goodbye, watching Grace climb into bed with him so happy that he was no longer connected to tubes, and try and stick his pacifier in his mouth." That is what we would like to say, so that people know just how hard this is.

Without a doubt we are grateful this Thanksgiving and always. We are probably more thankful than most people. To have survived this, to have such a wonderful daughter and spouse, to have had Max even for such a short time, to have managed to create a new life for ourselves - these are all things to be grateful for. But it will be hard, harder than anyone can imagine unless they have gone through it themselves. It is true that as time goes by, the day to day gets easier. We just have to accept the fact that Thanksgiving is always going to suck. This holiday weekend we will take Grace to the movies, visit with friends, and shop. We will get through it like we always do, but oh how we miss our son, and how our hearts ache for him.

What we miss today and always:


Happy Thanksgiving,

Margaret, Mike, and Grace

8 Comments:

Anonymous Anonymous said...

Hi, Mike, Margaret and Grace --

Just read your post for the first time. As I never met Max, I do love seeing him in video. I see Grace in his eyes, Mike in his coloring and, I think, Margaret in his smile. I am so very sad for you still, I can't imagine the whole thing, and your writing is beautiful it breaks my heart. Love to you all, Flo

Thursday, November 22, 2007 at 9:16:00 PM CST  
Anonymous Anonymous said...

Oh gosh, what a cutie patutie. I can only imagine how your arms ache to hold him again. He's so happy and bubbly in that clip that all I could think of is that he would want you to be happy too and would never want to see you sad. So sweet is his legacy. Thank you for sharing. Love, Lisa

Saturday, November 24, 2007 at 5:11:00 PM CST  
Anonymous Anonymous said...

Dear Mike, Margaret, and Grace, Thinking of you today and missing our sweet Max. I'll be looking for the brightest star tonight and remembering him. Love, Granny

Monday, November 26, 2007 at 1:54:00 PM CST  
Anonymous Anonymous said...

Love to all from the Chambers in Champaign.
xoxox

Tuesday, February 5, 2008 at 9:24:00 AM CST  
Blogger Uncle Mack said...

Dear Mike, Margaret, and Grace--

Sorry for leaving this message here, but I couldn't find a way to sign the guestbook, o find an email address.

Max was an adorable little feller and reading his story has been a beautiful, sad, heart and gut-wrenching, necessary, and informative experience. I am so sorry for your loss, but I'm so happy that you got to know and love him, and that you took every step imaginable to give him the best live possible.

I live in Chicago (near you), and my 7 month old niece, Gracie, was diagnosed with Hurler just a few weeks ago. We are on track for a cord blood transplant in April at Fairview. Naturally, our family is terrified but cautiously optimistic.

We are praying for good outcome, but understand the risks. That said, I want to learn everything I can to avoid as many potential problems on behalf of my sister Gracie. Since we are in close proximity, we you be open to a conversation about your experiences with the transplant process?

Thanks.
Mack Kelly

my email address is mgkelly@gmail.com and our website is Saving Grace: http://graciewhite.blogspot.com/

Tuesday, February 19, 2008 at 6:50:00 PM CST  
Anonymous Anonymous said...

Mike, Margaret, and Grace-

I am not sure if you remember me but my name is Sarah Gehrke and my son Dylan received a BMT about the same time as Max. Unfortunately he too became an angel but for Christmas that year you sent us a star to hang on our tree. I just wanted you all to know that the star goes on the top of our tree each year and hangs over my son Anthony's bed the rest of the year. I think about you often and know that Max and Dylan are watching over us. I know that Anthony and Grace will be safe because they have the best angels looking out for them. Thank you for sharing your thoughts and feelings because it helps to know others feel the same way as you.

Sarah (Gehrke) Bisesi

Thursday, February 21, 2008 at 1:43:00 PM CST  
Anonymous Anonymous said...

Hey Chicks! Just stopping by and letting you know I was thinking about you guys! Keep in touch!
Love, Lisa

Saturday, February 23, 2008 at 1:33:00 PM CST  
Anonymous Anonymous said...

It amazes me how these beautiful children have left their legacy of love. Max, thank you for introducing your loving family to the rest of us! You truly are a special angel.

Love, Lisa Post

Thursday, August 7, 2008 at 10:30:00 AM CDT  

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