Work-Up Week Day 1

Well, Max began work-up week with a bang! Today Max had:

1. Blood work
2. EKG
3. Physical exam
4. Neuro-psych testing
5. Chest x-rays
6. Echocardiogram
7. Neuro-psych results

We actually ran so behind on schedule that Mike and I missed the scary BMT Class we were supposed to attend. Not to fear, they will scare us to death on Wednesday when Max is in the OR for his MRI, spinal tap,
broncoscopy, endoscopy and CT scan. Max's lungs are still a concern as he is still

wheezing. The pulminologist and anesthesiologist have to sign off on him to have the procedures on Wednesday. Those tests will tell them if Max is ready to be admitted and begin chemo. If all goes well, he will be admitted next Tuesday. Other test results from today worth noting are the blood and neuro-psych. All the blood came back normal except one number that has to do with clotting. They are going to redraw that one tomorrow. The neuro-psych test also showed he is slightly delayed in speech and language. We were a little surprised as Max is constantly babbling and singing. Hurler kids are often behind in this area and though we left feeling a bit sad, we are hopeful that his speech therapy will help with this problem.

We are off to bed now. Our nervousness and chatty Max (he was standing in his crib at 3:45 this morning babbling) kept us up all night. We are hoping that his pulminology, GI and neurology consults go well tomorrow.

Love,
Margaret, Mike, Grace and Max