Day -2
I walked in this morning and found a totally different baby from the one I left last night. Last night was pretty bad. Poor Max couldn't keep a thing down. After some sleep and anti-nausea meds, he was wide awake and ready to party with Mike at 3 am! He was even able to do an hour's worth of therapy this morning. He hasn't eaten much today, only crackers, cheerios and apple juice. They just started him on supplemental nutrition (TPN) via the IV. He is still weak and tired, but what an improvement!
We braced ourselves for another bad night tonight but we were pleasantly surprised. He has not vomited once today! He was able to keep his Tylenol and blood pressure medication down. He did not get a fever after the ATG either. I am hoping he will have a quiet night. Thanks for praying for Max, I am sure it had something to do with him feeling better today.
He finished his course of Cytoxin today, but tomorrow is more ATG. Thursday is transplant day! Dr. Charnas, the neurologist, will be looking in on Max tomorrow. They measured his head yesterday and it was bigger than a couple of weeks ago. Dr. Grewal is not concerned, as Max is still asymptomatic and his fontanel has not changed.
In other news, Mike's mom (Grandma Chick) and Mike's sister (Aunt Peeps) left today. Grandma has been with us for so long it is strange that she is not here. She was a great help to us and we will really miss her. My mom (Grannie) and my sister Katie arrived today from Chicago. They will be here 6 days and then they head back home to move Katie into college. Grace and Max were thrilled to see them.
Please keep praying for our Mighty Max!
-Margaret
We braced ourselves for another bad night tonight but we were pleasantly surprised. He has not vomited once today! He was able to keep his Tylenol and blood pressure medication down. He did not get a fever after the ATG either. I am hoping he will have a quiet night. Thanks for praying for Max, I am sure it had something to do with him feeling better today.
He finished his course of Cytoxin today, but tomorrow is more ATG. Thursday is transplant day! Dr. Charnas, the neurologist, will be looking in on Max tomorrow. They measured his head yesterday and it was bigger than a couple of weeks ago. Dr. Grewal is not concerned, as Max is still asymptomatic and his fontanel has not changed.
In other news, Mike's mom (Grandma Chick) and Mike's sister (Aunt Peeps) left today. Grandma has been with us for so long it is strange that she is not here. She was a great help to us and we will really miss her. My mom (Grannie) and my sister Katie arrived today from Chicago. They will be here 6 days and then they head back home to move Katie into college. Grace and Max were thrilled to see them.
Please keep praying for our Mighty Max!
-Margaret
posted by Mike Ciacciarelli
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