Day +3
Let's call this day Butt Management Day. It's not a national holiday yet, but it oughtta be. Poor Max has a rear end that looks like it's on fire. We've been putting some serious goop on it and the result at the next diaper change is a sight that is something else altogether. Let's just say that he's been a real trooper and that he has only needed the morphine a couple of times.
Today we met with the transplant doctor and he told us Max is doing very well. He said we are doing about all we can do for his butt and that overall Max is going to get worse in a lot of areas before he gets better. He's gained a little weight so they're giving him diuretics to make him pee a lot of the extra fluid out. This is normal. Tomorrow he will meet with pulmonary again to just have another team listen to his lungs before he heads into the really tough days.
His head hair remains the same, no real fallout. It's actually a little unruly. I think we might have to get someone from the local Great Clips to "scrub in" and give him a trim. The CSA stuff that they give him to suppress his immune system is the stuff that will make him grow hair all over, and we think we see some effects on his legs and arms. Maybe we're crazy. There's no doubt we're going to have a little monkey on our hands soon.
Grannie and Auntie Katie will be leaving tomorrow and I don't know what we're going to do without them. We've had help full-time for our entire time in Minnesota, and after tomorrow it'll be back to the four of us. All we can say is thank you so much to our families for spending these crucial days with us. We are so fortunate to have the support of family at such a tough time. Special thanks to our Moms.
Right now it just changed to Day +4 because it's midnight and Max just got his breathing treatment. The RT (respiratory therapist) thought it was pretty funny to see Max sleeping with his butt in the air. I told her it's probably the most comfortable way for him to sleep right now.
I gotta go to bed, check out the newest pictures by clicking on Max's Progress. Have a great Monday. As our friend Tunia says, the best thing about Monday is that Friday is right around the corner.
Wearing rubber gloves,
Mike
Today we met with the transplant doctor and he told us Max is doing very well. He said we are doing about all we can do for his butt and that overall Max is going to get worse in a lot of areas before he gets better. He's gained a little weight so they're giving him diuretics to make him pee a lot of the extra fluid out. This is normal. Tomorrow he will meet with pulmonary again to just have another team listen to his lungs before he heads into the really tough days.
His head hair remains the same, no real fallout. It's actually a little unruly. I think we might have to get someone from the local Great Clips to "scrub in" and give him a trim. The CSA stuff that they give him to suppress his immune system is the stuff that will make him grow hair all over, and we think we see some effects on his legs and arms. Maybe we're crazy. There's no doubt we're going to have a little monkey on our hands soon.
Grannie and Auntie Katie will be leaving tomorrow and I don't know what we're going to do without them. We've had help full-time for our entire time in Minnesota, and after tomorrow it'll be back to the four of us. All we can say is thank you so much to our families for spending these crucial days with us. We are so fortunate to have the support of family at such a tough time. Special thanks to our Moms.
Right now it just changed to Day +4 because it's midnight and Max just got his breathing treatment. The RT (respiratory therapist) thought it was pretty funny to see Max sleeping with his butt in the air. I told her it's probably the most comfortable way for him to sleep right now.
I gotta go to bed, check out the newest pictures by clicking on Max's Progress. Have a great Monday. As our friend Tunia says, the best thing about Monday is that Friday is right around the corner.
Wearing rubber gloves,
Mike
posted by Mike Ciacciarelli
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