Day +6
Max had a good day today. He has been eating and drinking well, and his breathing treatments were reduced from every 2 hours to every 4 hours. He still sounds wheezy at times, and he always sounds like he has a cough on his chest. We are hoping it gets better or at least stays stable. His nose is runny too. I wish he knew how to blow his nose, I think he'd feel so much better!
Max had OT today and was not very cooperative. It was a new therapist and I felt bad about it. The thing is, Max is a determined little boy, and he wants to play what he wants to play, and doesn't always want to work on what he should be working on. He much rather cruise back and forth on the window bench then work on his fine motor skills. She was very impressed with his energy level, and Max worked himself up so much we had to call for an early breathing treatment.
It seems Bubba is getting heavier, so they increased his meds to make him pass more fluid. He is weighed every day and his intake and output are carefully watched to make sure he doesn't retain too much fluid. The change in medication means more wet diapers and wet beds!
Grace played with a Unit Volunteer for the second time this week. We have never left our kids with anyone other than family so this is a big step for me and Mike. Grace is more than happy to go with the college girls to the hospital play ground or to the play room on the pediatric floor.
Please send good thoughts to our friend Chris, the creator of this web site, who had surgery yesterday. We are so grateful to her for all of her hard work and wish her a very speedy recovery.
-Margaret
Max had OT today and was not very cooperative. It was a new therapist and I felt bad about it. The thing is, Max is a determined little boy, and he wants to play what he wants to play, and doesn't always want to work on what he should be working on. He much rather cruise back and forth on the window bench then work on his fine motor skills. She was very impressed with his energy level, and Max worked himself up so much we had to call for an early breathing treatment.
It seems Bubba is getting heavier, so they increased his meds to make him pass more fluid. He is weighed every day and his intake and output are carefully watched to make sure he doesn't retain too much fluid. The change in medication means more wet diapers and wet beds!
Grace played with a Unit Volunteer for the second time this week. We have never left our kids with anyone other than family so this is a big step for me and Mike. Grace is more than happy to go with the college girls to the hospital play ground or to the play room on the pediatric floor.
Please send good thoughts to our friend Chris, the creator of this web site, who had surgery yesterday. We are so grateful to her for all of her hard work and wish her a very speedy recovery.
-Margaret
posted by Mike Ciacciarelli
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