Day +8
Max slowed down a bit today. He had a great night of sleep, but Max vomited early this morning after taking his blood pressure medication. We attributed it to shooting too much into his mouth at once, but this evening he vomited again and we are afraid the dreaded "rough days" they have been talking about are upon us. There was a little bit of rusty looking blood in tonight's vomit, leading us to believe he has some sores somewhere in his GI tract. Nothing has appeared in the mouth yet, although his tongue is looking white.
Max took 2 long naps today, which was quite a change from the busy bee he has been lately. He just doesn't seem himself. They lowered his TPN (supplemental nutrition) today, because he had been eating so well. But today he hasn't eaten very much so I think they might increase it again tomorrow.
He continues to wheeze, but not too bad. He is getting naps every 2-4 hours as needed. And tonight he has a fever. They gave him Tylenol, he just had a chest x-ray, they started a new antibiotic, and he had a blood culture to see if he has any infections.
We signed up for the Care Partners Program and a family has been assigned to us. They are great people, and they went grocery shopping for us today. I have yet to meet them, but Mike has met them a few times. They want to help us any way they can, and they even have a son named Max.
I have to give thanks to Mike tonight who is bringing a very sleepy Grace back here to switch with me. It is my night to stay with Max, but my tummy hurts and I don't want Max to catch anything from me. I am attributing it to inhaling Subway for dinner, but you can't be to careful around here! Maybe this is more info than anyone needs, but I just thought I'd mention how grateful I am to Mike!
Please pray this fever passes and Max recovers from whatever it is that is making him sick! Also, send some notes of encouragement to Bella and family, she may be discharged to the RMH tomorrow.
-Margaret
Max took 2 long naps today, which was quite a change from the busy bee he has been lately. He just doesn't seem himself. They lowered his TPN (supplemental nutrition) today, because he had been eating so well. But today he hasn't eaten very much so I think they might increase it again tomorrow.
He continues to wheeze, but not too bad. He is getting naps every 2-4 hours as needed. And tonight he has a fever. They gave him Tylenol, he just had a chest x-ray, they started a new antibiotic, and he had a blood culture to see if he has any infections.
We signed up for the Care Partners Program and a family has been assigned to us. They are great people, and they went grocery shopping for us today. I have yet to meet them, but Mike has met them a few times. They want to help us any way they can, and they even have a son named Max.
I have to give thanks to Mike tonight who is bringing a very sleepy Grace back here to switch with me. It is my night to stay with Max, but my tummy hurts and I don't want Max to catch anything from me. I am attributing it to inhaling Subway for dinner, but you can't be to careful around here! Maybe this is more info than anyone needs, but I just thought I'd mention how grateful I am to Mike!
Please pray this fever passes and Max recovers from whatever it is that is making him sick! Also, send some notes of encouragement to Bella and family, she may be discharged to the RMH tomorrow.
-Margaret
posted by Mike Ciacciarelli
0 Comments:
Post a Comment
<< Home