Day +10
Well this is interesting. All the power went out on the streets around the hospital about 5 minutes ago. This follows the realization that the phone in the room is not working (but not because of electricity, it's just broken). As for the room and Max, he still has power going to the devices regulating his meds and there is limited light for the room. This laptop has a full battery so I should have another two hours left to type this message.
I remember when the power went out on the east coast that I wondered what the hospitals did during that time. I guess I'm about to find out.
Before I get to the day's news, both Margaret and I would like to say congratulations to our friends Jeb and Sarah. Today was their wedding in upstate New York and under less difficult circumstances, it would have been nice to attend. According to Jeb (my best man at the ice nuptials) the pastor was going to put in a good word for Max. So thank you to them for that and again, congratulations and best wishes for many happy years ahead. We love you guys.
I was just told not to open the doors because the vents that control the clean room are not working due to the power outage. Yikes!
As for Max, he's a little redder and a little rashier than yesterday but they are so far attributing that still to the new antibiotic from the other day. He'll be off that soon so hopefully it'll just go away. He didn't throw up today and didn't have even the slightest fever until tonight but it was slight and he's on Tylenol.
For those of you watching his white blood count, it was 0.3 today so we're still fluctuating. We've had 0.2, 0.1, 0.5, and now 0.3 so much ado about nothing so far. Overall, he's still trying very hard to be his old self but his body just doesn't have as much energy. That just means he's playing more while sitting or laying down. He's still making lots of sounds and smiling a lot -- especially when his big sister comes over and plays peek-a-boo.
Again, it is amazing how well he is doing with everything. He's lucky he doesn't know how sick he is supposed to be. I'm sure all of us would have a lot more to complain about, but he just keeps on smiling. He's added a variation to his "bye-bye" which is instead of just a little open and close of his hand, he now gets the whole wrist involved with more of a wave. He likes to drop this new move on his favorite aide, Sarah, and she loves to flirt right back.
It's getting kind of creepy with no lights outside. I hope Margaret calls soon and tells me that they are OK at Ronnie McD's.
If only I was a vampire,
Mike
I remember when the power went out on the east coast that I wondered what the hospitals did during that time. I guess I'm about to find out.
Before I get to the day's news, both Margaret and I would like to say congratulations to our friends Jeb and Sarah. Today was their wedding in upstate New York and under less difficult circumstances, it would have been nice to attend. According to Jeb (my best man at the ice nuptials) the pastor was going to put in a good word for Max. So thank you to them for that and again, congratulations and best wishes for many happy years ahead. We love you guys.
I was just told not to open the doors because the vents that control the clean room are not working due to the power outage. Yikes!
As for Max, he's a little redder and a little rashier than yesterday but they are so far attributing that still to the new antibiotic from the other day. He'll be off that soon so hopefully it'll just go away. He didn't throw up today and didn't have even the slightest fever until tonight but it was slight and he's on Tylenol.
For those of you watching his white blood count, it was 0.3 today so we're still fluctuating. We've had 0.2, 0.1, 0.5, and now 0.3 so much ado about nothing so far. Overall, he's still trying very hard to be his old self but his body just doesn't have as much energy. That just means he's playing more while sitting or laying down. He's still making lots of sounds and smiling a lot -- especially when his big sister comes over and plays peek-a-boo.
Again, it is amazing how well he is doing with everything. He's lucky he doesn't know how sick he is supposed to be. I'm sure all of us would have a lot more to complain about, but he just keeps on smiling. He's added a variation to his "bye-bye" which is instead of just a little open and close of his hand, he now gets the whole wrist involved with more of a wave. He likes to drop this new move on his favorite aide, Sarah, and she loves to flirt right back.
It's getting kind of creepy with no lights outside. I hope Margaret calls soon and tells me that they are OK at Ronnie McD's.
If only I was a vampire,
Mike
posted by Mike Ciacciarelli
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